Louis Hughes
If
Children have the ability to
ignore odds and percentages,
then maybe we can all learn from them.
When you think about it, what other chance is there but to hope?
We have two options, medically and emotionally: give up, or fight like hell".
-Lance Armstrong
Raise Awareness with the
Neuroblastoma Wristband
Pain is Temporary, Quitting Is Forever.
Samantha's
Story
About-Us
My brother Louis was born in March 2001 but when he was only 18 months old he was diagnosed with a very rare tumour called Pulmonary Pleura Blastoma, so rare there were only around 50 cases like it, in the world.
After a nightmare 3 weeks of tests, many operations and several visits to intensive care, the tumour was removed and he has been fine since. My mummy was pregnant with me at the time but doctors advised this should not happen again as the odds of having 2 children with cancer from the same parents were the same as lightening the same place twice.
I came into the world in March 2003, and unlike my brother, as a baby, I slept through the night pretty much straight away, I learned so much from him and was walking and talking way ahead of development schedule but then again I am a girl!
Mummy had a very bad time in which she had 3 failed pregnancies at various stages and could only be comforted by the fact she has 2 beautiful children in myself and Louis.
In the late summer of 2005, I began to wake many times during the night and demanding Milk which I should be growing out of by now. My appetite then disappeared and could no longer eat any foods during the daytime other than Fromage Frais Yoghurts.
Early September mummy and daddy were very worried as I was eating very little in the daytime and waking all night asking for milk but their big concern was that my belly now looked very swollen and bloated.
They took me for a routine visit to the doctors, who sent me straight to the hospital, I then endured countless tests and was even put to sleep several times whilst they looked to see what could be wrong with me.
On October 21st I was diagnosed with a childhood cancer called Neuroblastoma which affects under 100 children in the UK each year. It looks like lightening has struck twice in the same place for our family and this is where my battle begins.
The aim of this site is to raise awareness of Neuroblastoma and help you understand the challenges faced by children and their families as they fight this deadly disease, and hopefully inspire you to help stop the suffering of this rare but deadly childhood cancer around the world.
